Neuromuscular Diseases

Respiratory Muscle Strength and Function in Patients with Neuromuscular Disease

Subjects complete breathing tests before and after three months of respiratory training with a respiratory strength training device.

For more information about this study, including eligibility criteria, please go to the study’s ClinicalTrials.gov page.

Ages Eligible for Study:    6 Months to 65 Years   (Child, Adult)
Sexes Eligible for Study:    All

Status: Actively Recruiting Participants

If you are interested in participating please contact:

Jessica Ehrbar
Clinical Study Coordinator

 

Outcome Data and Specimen Bank for Patients with Rare Diseases: The Rare Disease Registry

The Rare Disease Registry is a tissue and data bank for patients with rare diseases.

If you are interested in participating please contact:

Blake Meyer
Clinical Study Coordinator

 

Rare Disease Longitudinal Observational Study

This observational study follows people with rare diseases for 10 years through review of their clinical records as well as optional research tests, such as breathing tests and functional tests.

If you are interested in participating please contact:

Stephanie Salabarria
Clinical Study Coordinator