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UF Health University of Florida

Powell Center for Rare Disease Research and Therapy

Department of Pediatrics in the College of Medicine

Support our Mission

Patient Organizations and Foundations

Jett Foundation

These groups—many founded by parents within the rare disease community—help connect patients and families to education, research, and support services. Here are just a few of the organizations that work to raise both awareness of rare diseases and funds directed toward research while supporting their communities.

National Ataxia Foundation

National Ataxia Foundation