About Us

Our Mission

The University of Florida Powell Center for Rare Disease Research and Therapy is dedicated to improving the lives of those suffering from rare diseases by providing world-class medicine and groundbreaking research. Our center has developed an interdisciplinary research program that integrates clinical, translational and basic research strategies that allows us to deliver quality services with compassion and excellence. 


Our mission is to provide our families with quality care by assuring that each patient receives individual, personal attention. We accomplish this standard through close collaboration between our staff, our patients and their families. Our research team conduct various clinical trials, working to identify improved therapies. As a result of this research, our patients are among the first to benefit from new discoveries. We believe in the ethical practice of research and we make it our mission to continually seek better and deliver the research care we expect for our own families.

We personally invite you to join us in our commitment to providing your child with the best rare disease care available. Together we can discover better treatments. Together we can provide the best care. Together we can create unstoppable momentum.

Our Values

  • Quality
  • Innovation
  • Teamwork
  • Service
  • Integrity
  • Compassion