Guidance for COVID-19
In order to inform the neuromuscular community of specific information which is relevant to COVID-19, we have prepared the following information which expands on the CDC recommendations for the general population.
A team of University of Florida Health researchers is using an established gene therapy technique to quickly develop a COVID-19 vaccine that could be tested in humans later this year.
Clinical Research Center
A clinical trial is a research study that looks into the safety and usefulness of a drug in improving symptoms or slowing, stopping, or reversing the progression of a disease. Most drugs tested in clinical trials are not yet available to the public (Phase I, II, III studies) while some studies involve medications that are already available (Phase IV studies).
FLORIDA PHYSICIAN FEATURES
UF researchers’ groundbreaking work from 1980s leads to new treatment for debilitating neuromuscular disease
Dr. Barry Byrne has a unique ability to inspire others as he fights for his patients’ lives
UF performs first diaphragm pacing surgery on a patient with Pompe disease
The Fox family not only found a new home in Gainesville, they found new hope.
Pediatric Neuromuscular Clinic
The pediatric neuromuscular program at UF Health Shands Hospital offers one-stop access to comprehensive care, including leading-edge diagnostic techniques, medical treatments and research. Our neuromuscular program cares for infants, children and teens with neuromuscular disorders.
Dr. Barry Byrne is the Associate Chair of Pediatrics and Director of the Powell Gene Therapy Center. He obtained his B.S. degree from Denison University, his M.D. and Ph.D. from the University of Illinois. He completed his Pediatrics residency, cardiology fellowship training and post-doctoral training in Biological Chemistry at the Johns Hopkins Hospital. He joined the University of Florida in 1997 and is now the Earl and Christy Powell University Chair in Genetics.
Our research team conduct various clinical trials, working to identify improved therapies. As a result of this research, our patients are among the first to benefit from new discoveries.
Management of neuromuscular disorders requires multidisciplinary expertise. The pediatric neuromuscular program at UF Health Shands Hospital offers one-stop access to comprehensive care, including leading-edge diagnostic techniques, medical treatments and research.
Consistent and frequent neuromuscular rehabilitation is one of the few treatments, at this time, for all with a neuromuscular disease. It’s important through all stages and ages to potentially delay progression of the disease.
When you buy a paper Shamrock in store, or make a donation online, you’re helping give strength to kids and adults with muscular dystrophy, ALS, and related neuromuscular diseases.
MDA Summer Camp
At MDA Summer Camp, kids with muscular dystrophy and related diseases can live beyond limits.